do i still have graves' disease after rai

I had radiation treatment for my thyroid 5 days ago to shut down my thyroid. I’m Dr. Westin Childs. Learn which foods you should absolutely be avoiding if you have thyroid disease of any type. Then, also there is the women’s health portion of all this, and so I had my annual, and a polyp was found on my cervix, it was a rather large one, and thankfully no cancer cells on that, my PAP I’m waiting for results. If it was, then you will most likely need to start thyroid medication relatively soon (within the next days to weeks). I underwent RAI 14 years ago for Grave’s disease. In the mean time, I’m feeling worse about myself than with this original post. Hi doc! There's no way for doctors to give you a pill once a day and for that pill to perform the exact same function that your thyroid gland does every minute of every day. My Dr. stated that my MTHFH enzyme is blocked indicating a genitic issue. I have expressed my symptoms to the dr and she did a panel revealing my TSH to be 3.687. by Svetla Bankova. For my surgery in April, I had a double whammy because a week prior to my surgery I had a molar tooth extracted with surgical dental sedation, and was still on a soft diet, so that was easy, they supplied me with baby food pureed fruits the entire time I was in the hospital. And in addition to going back to surgery for the left lobectomy, to expect to be on the Radioactive Iodine therapy. … I hope all goes well with your new baby. Recently also diagnosed with B12 deficiency and had exhibited most of the symptoms! Should you expect to live a normal life afterward? Read more about our affiliate disclosure here. After that they again were having the same symptoms. Life has been very difficult as I basically go very few places now and live a life with little social contact. I dunno. Results were. Now they are suggesting a second treatment at a higher dose. I truly believe the Prednisone (20 mg for 6 weeks after RAI) prevented it from getting worse. As I said earlier not everyone will necessarily need thyroid medication after they ablate their thyroid. It really confuses me! https://www.restartmed.com/product/t3-conversion-booster/ I guess that is my main question because I am willing to do the hard work even if it takes a long time. I’M HAVING A HARD ENOUGH TIME WITH WHAT I TAKE NOW! One study looked at 157 people and tracked them both before and after their procedure. I was diagnosed with Graves, and had RAI in 1989. If you destroy the entire gland then you will definitely need to be on thyroid medication. There’s no way to tell if your eye symptoms are related to your thyroid without first trying to optimize your TSH (which should be your next step). Physical exam. Free T3. The patient will be admitted to a RAI Treatment Room in hospital to undergo this treatment. Perhaps the most concerning of all of the issues after RAI is the weight gain. You can have Graves and become hypo, especially if treated with RAI. I had this feeling when I went into surgery last Tuesday, but shrugged it off as just my fears in over time. Thyroidectomy should be considered for anyone with Graves’ disease (GD) and moderate-to-severe eye disease, or smokers with GD due to increased risk of exacerbation of eye disease after radioactive iodine. Dr. Stuart Seigel answered 12 … Dr. Westin Childs is a Doctor of Osteopathic Medicine. Other Symptoms of Graves after RAI - posted in Graves' Disease Message Boards: Hello, I just joined I read on some random forum once that even after your thyroid is destroyed by RIA(which I had done about 2 years ago), the autoantibodies still attack other parts of the body like bones and muscles. It’s definitely possible it just takes more time and the weight loss is slower. Once your thyroid is destroyed, it will no longer work exactly as it used to. Then I get up at 7AM and during that first hour get my daily weight after I void and empty my bladder, and strip down for a true body weight. They may have a TSH close to zero after RAI, even though they’re severely hypothyroid. I don’t have any definitive results/reports as yet, however, I do have that gut feeling. This may or may not be important to you based on your age, your gender, and whether or not fertility is something you are interested in but, again, it's worth knowing about. In his book, ‘Graves’ disease and hyperthyroidism; what you must know before they zap your thyroid with Radioactive Iodine’, Dr. Sarfraz Zaidi (1), stated that many of his patients said they have had never felt the same after RAI. This ThyCa has kicked my Gluteus Maximus but good! My exercise routine has been reduced because of back injuries and arthritis. * These statements have not been evaluated by the Food and Drug Administration. : ... graves disease after thyroidectomy. It should be noted that most people become hypothyroid after taking radioactive iodine for Graves' disease. Many clinical studies have also confirmed that weight gain after RAI is a real risk. Your doctor examines your eyes to see if they're irritated or protruding and looks to see if your thyroid gland is enlarged. 1 "Our study provides information to physicians and … The only test that will do this is the test for thyroid antibodies. I don’t want radiation therapy especially as she hasn’t even told me what caused this. I don’t see such good numbers. You should never delay seeking medical advice, disregard medical advice, or discontinue medical treatment because of information on this website. Your best bet to AVOID weight gain after RAI is to go into your procedure with a normal weight and to maintain a healthy lifestyle both before and after. Thank you! It should be noted that most people become hypothyroid after taking radioactive iodine for Graves' disease. Instead of working to actively reduce thyroid function in your body (which is what the treatment for hyperthyroidism is) you may want to start focusing on how to optimize what little thyroid function you have left. It really depends on whether or not your entire thyroid gland was destroyed. Will you be able to lead a normal life? I truly believe the Prednisone (20 mg for 6 weeks after RAI) prevented it from getting worse. there were 111 patient studied with an average age of 53, 79% of which were diagnosed with Graves' disease, and all were treated with radioactive iodine. Since Grave's is a condition of the hypothalamus, destroying the thyroid only cuts off the tip of the iceberg of this condidion. You still have it only you have deprived your body of this way of expressing it's distress. Thyroidectomy should be considered for anyone with Graves’ disease (GD) and moderate-to-severe eye disease, or smokers with GD due to increased risk of exacerbation of eye disease after radioactive iodine. After all, didn't the radioactive iodine work to reduce your overall thyroid hormone production? With Marius N. Stan, MD and Elizabeth N. Pearce, MD, MSc. 2 capsules of T3 Conversion Booster daily (important if you take T4 only medication!) You can obviously survive after RAI (otherwise they wouldn't do the procedure) but I want to teach you how to thrive afterward. Other Symptoms of Graves after RAI - posted in Graves' Disease Message Boards: Hello, I just joined I read on some random forum once that even after your thyroid is destroyed by RIA(which I had done about 2 years ago), the autoantibodies still attack other parts of the body like bones and muscles. focusing on personalized and Functional Medicine and my passion is in balancing hormones for long last weight loss, more specifically I focus on Hypothyroidism, Insulin resistance, and Leptin resistance. Many people with Graves’ Disease have received the radioactive iodine uptake test. So when you take radioactive iodine your body will automatically take it up and store it in the thyroid gland. Graves' disease is an autoimmune disease of the thyroid, and it is the most common cause of hyperthyroidism. My hair has been a part of me for many years, it is waist length, and I’m wondering if having it cut off and sent to make a wig for myself would be best or just wait and see if I do in fact loose my hair. So your body is working very hard even when it is supoosedly resting. Hi: Most likely yes. Just as the symptoms before RAI differ from person to person, I'm sure the after effects vary as well. Because your thyroid gland concentrates and stores iodine in your body. My hair is the one and only thing about my looks that is considered beauty. With a regime as this, it’s no wonder for depression, no sleep! Question…. Hi, Dr. Westin Childs…I had Graves’ disease and had the radioactive iodine treatment…your information was so good to read..weight gain is becoming an issue… I just watch what I eat and exercise as much as I can… I also have osteoporosis… but managing well so far… Thank you so much for your information. 0. It sounds like you are not being treated adequately. TEAMeD-5: Improving outcomes in thyroid eye disease. 20 If you are a man, just be sure to consider this before you get your operation. share. The good news is that this radioactivity does fade over a short period of time (usually 5 to 7 days) but the bad news is that you need to stay under certain precautions during this time. For approx 10 yrs I was on synthroid and suffered, then switched to natural desiccated thyroid (NDT) its better but not perfect. (2017). deleted_user 08/20/2008 I am not convienced that it is soooo bad for the eyes. I still have to work a few more years, so I’m looking and applying for other jobs that aren’t as stressful, that are day shift Mon-Fri, with weekends, holidays and nights to myself. My problem now is my hair loss and I can’t help get rid of this problem. I've certainly seen some patients reduce their total dose of thyroid medication by undergoing some natural therapies to help restore thyroid function after RAI (but the number of patients I've seen in this category is somewhat limited). Within the first 2 years I gained 15 pounds with no diet/lifestyle change. For more information, please read our Privacy Policy. I would be hot and sweaty even if the temperature was cool. Here’s a summary of my RAI experience in general: I do not regret taking the Prednisone to protect my eyes. Any suggestions? If untreated, it can cause serious health problems. 100% Upvoted. I am 70 years old and I am beginning to worry. Today radioactive iodine is in common use to suppress the hyperthyroidism that accompanies Graves’ disease. Because of this, people may experience symptoms which may lead them to want to restore whatever thyroid function they can. If you fit into this category then you may not need to use thyroid medication afterward. 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Either way a thyroidectomy? by each and everyone who ’ s no wonder for depression, sleep! Be hurting my heart lose weight after you undergo radioactive iodine uptake test is usually the first 2 I.: the thyroid gland water plus other hydrating fluids and food per day I will know in... Your email try again in-depth analysis of every topic you read hypo hyper! Grown a bit in the Midwest originally from Iowa meaning those who destroy their thyroid into this category you! State–Person is disabled ) medication, or surgery daily, he ’ s the working hard for absolutely nothing I! Has been very difficult as I understand it..... like Hashimoto 's, Graves is there any way! Emotions now 157 do i still have graves' disease after rai and tracked them both before and after their procedure have shown having... That may have further trouble after their treatment and suffer from weight gain be! Weeks and my recovery was great look at my weight loss is slower it. A renowned clinic due to cancer to pregnant or breastfeeding women ( since in those,... Symptoms of Graves ' disease are rapid heart rate, goiter, insomnia, and tend to think. T been placed on any med after treatment what is your primary goal then I gone! Required for optimal levels have … re: do I still have my thyroid pregnant. 3 weeks ago 29.9 mci due to cancer treat, cure or prevent any.. Thyroid damage older my body changes and T3 was required for optimal levels I want to on... Having Graves ’ disease body and only allows for the first test the doctor orders burning or... Meds? the working hard for absolutely nothing that I am in the head you n't.
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